Partner Organizations

Team Telomere

New York, NY | View Website

Our mission is to provide information and support services to families worldwide affected by Dyskeratosis Congenita and Telomere Biology Disorders, to encourage the medical community's research in finding causes and effective treatments, and to facilitate improved diagnosis by educating medical providers. 

23 Stories

Survivor of Salsa

by Riley, Chloe, & Grant (age 17, 17, 17) | from Team Telomere

1 Song

The Giant Teddy Bear, Grandma & Me

by Cal, Jimmy, & Shep (age 5, 5, 3) | from Team Telomere

1 Song

The Dochies

by Bridget (age 10) | from Team Telomere

1 Song