Stories

All About Rachel

by Rachel (age 8) | Partner Organization: The Sing Me a Story Foundation

A few weeks Prior to Rachel‘s first birthday she was hospitalized due to an illness that resulted in her throat almost closing up. She spent a week in ICU. After that time, she was more susceptible to developing more extreme symptoms from even a common cold. We took many trips to the hospital. Thankfully, she outgrew this. I think as a result of these trips along with having to visit the hospital frequently for blood draws for her thyroid checks, she developed a love for playing Doctor. In December of 2023, at age 7, Rachel was hospitalized yet again. This time she exhibited signs of diabetic ketoacidosis. She was then diagnosed with Type I Diabetes. This was an immediate life change for a little girl that has trouble understanding and processing anything other than what she knows from experience. She went from being able to have any type of snack or meal at anytime to having mom tell her when she couldn’t eat and what she couldn’t have. She had to learn that she needed an injection (hokey) prior to eating and another before bed. She needs to have a sensor (sticker) applied to her arm every 10 days. She needs to wear a monitor around her neck when playing outside and she now needs a nurse to follow her around at school. These were all tough adjustments, especially the painful ones (the hokey’s and stickers), but is able to do it with it becoming a routine. Through it all she still loves doctors and nurses. Really anyone wearing a mask in a hospital setting is a “doctor” to Rachel and always gets a big hello and often a hug. Rachel loves playing Doctor with all of her babies and stuffed animals. She also enjoys big people patients.
Her favorite people include: ● Daddy, her big sister Alex, Mommy, Pop-Pop and Noni, her dog Hawkeye and Jesus (bold are her top three)
Favorite toys: ● Doctor kit and babies
Favorite activity: ● A Dinosaur (T-Rex) hunts with a map and her dad ● Swimming ● Going to church ● Going to school ● She loves to be silly. Loves jokes, silly words (like underwear), and loves to make people giggle
Favorite color: ● Green Favorite Song: ● Raise a Hallelujah (she can almost sing it word for word)
Other things special to Rachel: ● ”Hokey” (her shots before eating) ● ”Sticker change” (that’s what we call the CGM sensor, it gets a cool sticker over top) ● ”Nice and easy” for doing something that might hurt. ● ”what are your numbers?” She will then show me her CGM monitor. It will alarm when she goes low (or high), if she’s low she gets Smarties or a juice (or something else)

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Dear Rachel

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Laura Nobili

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