by Lilly (age 15)
| Partner Organization: Connecting Families - Urea Cycle Disorder Foundation
Be sure to contribute to my SMAS Jukebox!
Beautiful Family, Beautiful Liliana and Beautiful Song! So inspirational
Amazing story and song. Great work Lilly and Cris.
It was such a Pleasure as a Rare Patient Disease Advocate RDLA I met Lilliana Leona and family event during RDLA WEEK 2018. Beautuful family and I truly a believe Art is Healing. The song is beautiful coming from the Heart compose by Liliana. Such a pleasure meeting the loving family.
Thank you Chris and Horizon for helping people with rare diseases. I'm inspired and touched with your dedication to helping patients who suffer from rare diseases
You are an amazing inspiration to Lilly and to the Horizon Pharma family. THANK YOU <3
Cris - what an amazingly positive contribution you're making. Enjoy all the fruits of these selfless labors. Very best, Alan
Thank you so much for helping to give those with a UCD a voice!
Great example, inspiration for giving voice to those whose stories need to be heard. Thanks Cris! You Go Lilliana, take that song to heart!
What a powerful instrument you have, Cris - so glad you use it for good!
What an amazing and heartfelt song. Truly captured Lily's beauty and strength!
Inspired to donate by Cris Jacobs