Partner Organizations

RARE Youth Revolution

Kent, ENG | View Website

The RARE Youth Revolution is a dedicated news platform for young people to access relevant content centred around rare diseases.

Approximately 400 million people worldwide live with a rare disease, almost 50% of these are children and young people, and many more may be a young carer, supporting a loved one.

This platform is powering up young RARE voices to be heard and empowering a future generation of rare disease advocates.

2 Stories

Mystie's Nightmare

by Maddie (age 14) | from RARE Youth Revolution

1 Song

Allegra and Luna's Cat Parlor

by Allegra (age 5) | from RARE Youth Revolution

1 Song